The IV line was disconnected from the PICC line this afternoon. This means that Ben can wear regular shirts without assistance from a nurse! The PICC line is covered by a little mesh sleeve so it doesn't bother him as much -- basically it is a port for drawing blood or administering drugs intravenously.
Ben is feeling good. We're just watching TV.
Nicole and I started this blog to keep friends and family updated on Ben's fight against leukemia which began on May 8, 2007. If you want to make a donation to help Ben and other cancer patients, please click the links in the right margin. Thanks to everyone for your support and encouragement.
Links
- American Cancer Society
- Ben's Starlight Foundation Donations Page
- Camp Ronald McDonald
- Cedars-Sinai Donations (Please Specify Account No. 216620, Pediatric Hematology-Oncology Fund)
- Children's Oncology Group
- Children's Oncology Group Donations
- Donate Blood
- Facebook Cause -- Cedars Pediatric Hematology-Oncology Fund
- Hockey Fights Cancer
- Make-a-Wish Foundation Donations
- National Cancer Institute Leukemia Page
- Pablove
- Starlight Children's Foundation
- The Leukemia and Lymphoma Society
- The Samuel Oschin Comprehensive Cancer Institute at Cedars-Sinai Medical Center
Blog Archive
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2007
(203)
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May
(68)
- Who reads this blog, anyway?
- Thank you, Turning Point!
- Oops! (And thank God!!!)
- Bad News
- Preliminary Report
- The Big Day (?)
- Message of the Day
- No news yet
- Waiting for Big Test Results
- Hey Ms. Thomas!
- Steroids
- Thanks for the Comments!
- Great E-Mail to Scott
- The PICC Line
- The New Prescription
- Another One Bites The Dust
- The Waiting is the Hardest Part
- The Infusion Center
- Ugh!
- Some Test Results
- Blood
- Hello from the Playroom
- You want photos, eh?
- Back to Work
- Tuesday Report
- First Outpatient Visit, Part 3
- First Outpatient Visit, Part 2
- The Outpatient Stuff Begins
- Afternoon Report
- Sunday Morning
- Post-party, no depression
- First Day at Home
- We're Home!!!!!!!!
- Links Updated
- Sorry for the confusion
- No title
- Waking up
- Morning Update
- Another reason to love the NHL
- Starlight Starbright Children's Foundation
- Still on track
- Readership
- Pills, pills, pills
- More progress
- Thank You!
- Shots are done
- Morning update
- Ben's first post
- More good news
- Treatment, Part II
- The Longer Term
- Another good place to donate
- "pre-B"
- Some Great News
- Questions from Ben
- Aunt Stefanie, part 2
- No title
- Aunt Stefanie is working overtime!
- Open Forum Answer #1: Advance Signs?
- More on Donating
- Bone Marrow Test Results
- Questions about gifts and donations
- Neat e-mail
- First Blackberry Post
- Open Forum
- Treatment, Part I
- What Ben Has
- Introduction
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May
(68)
Ben's Buddy Map
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3 comments:
You should know that people you've never even met are praying for Ben's recovery. And we know he's going to do it!
Shalom From Israel,
We are delighted to hear of your son's progress! I can only imagine, or perhaps fear (as a fellow parent) how incredibly trying this period has been. Our dear friend Stephanie has tuned us all in, and we hope that in someway, we can be of some assistance, whether emotionally, spiritually, or whatever.
I am sure that advice is pouring in, and perhaps you are tired of hearing the recommendations of others, etc. However, if not, here is one quick detail which may have surprisingly positive results in a short period of time. Though I am sure you already know this, there is an internationally agreed accord that affirms the rights of all child patients to consume any and all available quantities of ice cream at anytime. I remember when I was a child and had to have surgery performed, that I greatly appreciated this right, and exercised it often - Perhaps thats why I can remember this experience from my toddler years! Feel free to apprise Ben of his rights to Ben & Jerries and Haagen Daz throughout - you might be find the uplifting of his spirits will have other favorable influences on his health. That possibility alone was enough of a reason for me to share this thought!
All of our Love,
Avishai, Marla, Michaella, and Navona Goldfinger
Hi Ben!!
My name is Shira and I'm a friend of your aunt Stefanie. I just saw her when I was visiting Israel last week and she told me all about you. She also showed me your picture, which is on her desk at work.
You are one handsome guy!!!
When I'm not visiting Israel or other cool places, I live in New York City, on the Upper West Side of Manhattan. This city is wonderful but also crazy at times. I don't know if you have ever been here, but I wanted to send you an invitation to come visit my family when you finish your treatments.
Here are some really great things we can see:
The Bronx Zoo
The Central Park Zoo
The American Museum of Natural History (where Night at Museum is set)
The Metropolitan Museum of Art
The Statue of Liberty
The Empire State Building
The Brooklyn Bridge
The South Street Seaport
A Broadway Show
I have three kids but they are older than you, HOWEVER, my youngest son, Judah, would be a great kid to hang out with. He is almost 12 and is fun-loving and wacky. He loves bike-riding and swimming and would live at the Natural History Museum if I let him. Once, when they had the Albert Einstein exhibit, he made me go about 3 times!
Judah is also a cellist with a New York City youth orchestra. He has a concert at Lincoln Center next week. If you ever come to town when he has a concert, we can take you to see kids from the age of 7 and older playing beautiful music.
Someone else you will be happy to meet when you come to see us is our dog Alfie the Pomeranian. In case you are not familiar with Pomeranians, I have to tell you that they are the cutest and most fantastic dogs in the entire world. They love people, in fact, Alfie jumps up to lick everyone he passes on the street. Even tough guys like the guards at Columbia University (where we live) get all mushy when they see Alfie. A lot of these guys are Spanish and it is pretty funny to hear them say things like "Que Lindo!!!!!" and pet him when he comes by.
Alfie has his own blog, like you. You can visit it at http://alfie-pomeranian.blogspot.com.
Guess what???? He just barked to me that he wants to devote a special blog entry to you!!!!! You can visit his blog in the next day and see what he writes!!
Anyway, I have been reading about you and your amazing fight. I can tell you are a champion.
I look forward to seeing you in New York. I will be in touch with your aunt Stefanie so we can make plans.
Luv from New York,
Shira
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