Well, Ben has a cold but is otherwise feeling pretty good and is in good spirits. Unfortunately, we went to the hospital this morning and found out his ANC has dropped to 178 :(
He is not allowed to go to school this week so he will miss the Valentine's Day party scheduled for Wednesday, but thankfully there are only 3 days of school this week. He is a little bummed because we had all kinds of plans for the 5-day weekend ahead but I think we have to cancel most of them and come up with different things to do. Ugh!
Monday, February 8, 2010
Friday, January 29, 2010
Spinal Tap
Another one down...only two left before the end of treatment in August!!
All went well yesterday. Ben had some distress coming out of the sedation - lots of crying and confusion - but it didn't last long and he doesn't remember any of it. He feels pretty good today but unfortunately he is neutropenic (ANC is 428) so he couldn't go to school. The doctors had actually given the green light for school, but there are lots of sick kids so we made the decision to keep him home since we don't want a repeat of his Fall hospital stay! The blood work also showed some elevated liver functioning so we will go back to the hospital, either next week or the following week, for more blood work to check on what is going on with that.
All went well yesterday. Ben had some distress coming out of the sedation - lots of crying and confusion - but it didn't last long and he doesn't remember any of it. He feels pretty good today but unfortunately he is neutropenic (ANC is 428) so he couldn't go to school. The doctors had actually given the green light for school, but there are lots of sick kids so we made the decision to keep him home since we don't want a repeat of his Fall hospital stay! The blood work also showed some elevated liver functioning so we will go back to the hospital, either next week or the following week, for more blood work to check on what is going on with that.
Wednesday, January 27, 2010
Sorry
Well, I took a little break from posting. Everything had been a bit overwhelming for me for awhile and I just couldn't get myself to post anything. Sorry about that!
Ben is well. He goes in for a spinal tap tomorrow so I will be sure to post how it all goes. Ben has been tired and dealing with all of the emotional ramifications of this whole process but on the whole he is good. Things are fantastic at school (as someone at his school said, "his test scores for the standardized test were off the charts!") and with friends. He continues to be an amazing and brave boy who surprises me with his strength and kindness on a daily basis!
Ben is well. He goes in for a spinal tap tomorrow so I will be sure to post how it all goes. Ben has been tired and dealing with all of the emotional ramifications of this whole process but on the whole he is good. Things are fantastic at school (as someone at his school said, "his test scores for the standardized test were off the charts!") and with friends. He continues to be an amazing and brave boy who surprises me with his strength and kindness on a daily basis!
Thursday, December 3, 2009
Thanks, Mr. Colley!!!
Pat Colley, one of Ben's teachers, is running an Olympic-distance triathalon next Spring to raise money for the Leukemia and Lymphoma Society in Ben's honor! Please support Pat by checking out his Team-in-Training page. Link here and in the right margin.
Thanks so much Pat!!!
Thanks so much Pat!!!
Friday, November 20, 2009
All Is Good
Sorry that I haven't posted in so long. Things are very good. Ben had to stay home from school awhile longer after the last post because he was neutropenic but only for another week. He is back and so thrilled to be there. We just went back to the hospital for a blood check and received wonderful news - his ANC is up over 2000. Woo hoo!! They moved his meds up to 75% from 50%. We don't need to go back for 2 weeks when he will get Vincristine and another blood check. The expectation is that his numbers will stay strong and he will be put back to 100% of medication levels at that time.
On another note, Ben and David's hockey team won the championship. They were so excited. Yay Blue Team!
On another note, Ben and David's hockey team won the championship. They were so excited. Yay Blue Team!
Wednesday, October 28, 2009
Visit to the School
Although the doctors said on Sunday that Ben should be fine to go to school today...with everything that is floating around right now we decided to stay home an extra day to ensure his ANC had a good chance to come back up out of the neutropenic levels.
Even though he stayed home, we decided that since the Book Fair was taking place yesterday and today we would take a little trip over to the school so Ben would have a chance to pick out some fun books while the annex wasn't so crowded. He also had a chance to poke his head in to say hello to his teachers and classmates. Everyone was so excited to see Ben! He brought everyone a fun Halloween themed baseball hat that we received from the Playroom at the Cancer Center and everyone loved them.
Ben will go back to school for a half day tomorrow before we head back over to the hospital to check his numbers. We are hoping for really good news so Ben won't need to miss the fun Halloween carnival and parade at school on Friday and of course the fun night of trick or treating on Saturday!!
Even though he stayed home, we decided that since the Book Fair was taking place yesterday and today we would take a little trip over to the school so Ben would have a chance to pick out some fun books while the annex wasn't so crowded. He also had a chance to poke his head in to say hello to his teachers and classmates. Everyone was so excited to see Ben! He brought everyone a fun Halloween themed baseball hat that we received from the Playroom at the Cancer Center and everyone loved them.
Ben will go back to school for a half day tomorrow before we head back over to the hospital to check his numbers. We are hoping for really good news so Ben won't need to miss the fun Halloween carnival and parade at school on Friday and of course the fun night of trick or treating on Saturday!!
Sunday, October 25, 2009
We Are Home!!!!
After much speculation that we would need to wait until the official report from the CT scan, one of Ben's oncologists decided today that he was good to go home!!! We were so overjoyed! No words can express the excitement in the room. I think we were packed and ready to go in about 5 minutes.
We still do not know exactly what Ben had...but it was probably one of the thousands of viruses out there that they cannot test for. He still has a bit of a cough but no fever since Friday night. He is not able to go back to school quite yet, but should be able to by Wednesday. More than enough time to fully participate in all the Halloween festivities.
David is back home after spending much time with his Grammy and Poppy. Although we are so lucky he had such a safe and fun place to be during this whole ordeal, we are so happy to have him home. The boys were so cute upon reuniting (this was the longest they have ever been apart - the hospital did not allow visitors under the age of 18 during this horrible flu season). Of course, this was short-lived and they were back to their fighting and teasing and tormenting in no time :)
We also had the return of the puppies this afternoon! We were so happy to see Dakota and excited to see how much Cherokee has grown in the past 10 days. It was a crazy and noisy household by bedtime...just the way we like it! We are so grateful to have things back to normal!
The boys are sleeping soundly with Shaggy snuggling with David and Zorro loving up next to Ben! Yay!
We still do not know exactly what Ben had...but it was probably one of the thousands of viruses out there that they cannot test for. He still has a bit of a cough but no fever since Friday night. He is not able to go back to school quite yet, but should be able to by Wednesday. More than enough time to fully participate in all the Halloween festivities.
David is back home after spending much time with his Grammy and Poppy. Although we are so lucky he had such a safe and fun place to be during this whole ordeal, we are so happy to have him home. The boys were so cute upon reuniting (this was the longest they have ever been apart - the hospital did not allow visitors under the age of 18 during this horrible flu season). Of course, this was short-lived and they were back to their fighting and teasing and tormenting in no time :)
We also had the return of the puppies this afternoon! We were so happy to see Dakota and excited to see how much Cherokee has grown in the past 10 days. It was a crazy and noisy household by bedtime...just the way we like it! We are so grateful to have things back to normal!
The boys are sleeping soundly with Shaggy snuggling with David and Zorro loving up next to Ben! Yay!
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