Friday, January 29, 2010

Spinal Tap

Another one down...only two left before the end of treatment in August!!
All went well yesterday. Ben had some distress coming out of the sedation - lots of crying and confusion - but it didn't last long and he doesn't remember any of it. He feels pretty good today but unfortunately he is neutropenic (ANC is 428) so he couldn't go to school. The doctors had actually given the green light for school, but there are lots of sick kids so we made the decision to keep him home since we don't want a repeat of his Fall hospital stay! The blood work also showed some elevated liver functioning so we will go back to the hospital, either next week or the following week, for more blood work to check on what is going on with that.

Wednesday, January 27, 2010


Well, I took a little break from posting. Everything had been a bit overwhelming for me for awhile and I just couldn't get myself to post anything. Sorry about that!

Ben is well. He goes in for a spinal tap tomorrow so I will be sure to post how it all goes. Ben has been tired and dealing with all of the emotional ramifications of this whole process but on the whole he is good. Things are fantastic at school (as someone at his school said, "his test scores for the standardized test were off the charts!") and with friends. He continues to be an amazing and brave boy who surprises me with his strength and kindness on a daily basis!